Honoring Courage, Caregiving,

and Healthy Love/Healthy Grief

Memoir Coming June 2026:

Dancing in the Face of Death

Susan Koen, Ph.D., is a psychologist, author, and speaker whose work explores the profound terrains of love, death, courage, and human connection. For decades, she served as a researcher and management consultant, helping individuals and organizations understand circadian rhythms and the neuroscience behind human errors and safety lapses at work.

Her life and career took a transformative turn when her beloved partner of forty years was diagnosed with a genetic brain disorder, the GRN version of Frontotemporal Dementia (FTD) known clinically as bvFTD. As Susan became her primary caregiver, she entered a chapter marked by advocacy, tenderness, humor, and the emotional complexity of witnessing someone you love slowly disappear.

About The Author

Learn more

About the Book

Dancing in the Face of Death: A Story of Love, Caregiving, and Courage Amid a Dementia Diagnosis is a tender memoir about devotion, resilience, and the steady choice to remain close as Frontotemporal Dementia (FTD) changes everything. Through the lens of a decades-long lesbian partnership tested by illness, Dr. Susan Koen explores healthy grief, personal agency, and death with dignity—offering insight and solace to others navigating a similar journey.

Expected release: June 2, 2026.